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Autism Organizations

Sourced from http://www.thinkingautismguide.com/p/position.html on 8.12.2020.

How can you know which autism organizations to support and trust? Those we endorse follow these guidelines:

  1. Supports, not cures: autism is a naturally occurring human neurological variation and not a disease process to be cured. Autistic neurology, sensory traits, processing, communication, and other autism-specific traits should be accommodated, not stigmatized. Qualify of life for autistic people of all ages and abilities should be a primary focus. Medical or health issues that may accompany autism should be addressed as co-occurring conditions, not as integral to autism.
  2. Autistic-informed supports and therapies:Services for autistic individuals must improve their quality of life. When there is conflict between non-autistic autism professionals and the autistic community as to an approach or therapy, the organization takes autistic concerns seriously, and looks to participatory and otherwise autistic-informed research, and self-advocate leadership, for direction.
  3. Inclusiveness: Autistic people must have significant, meaningful, and primary roles in all aspects of the organization, especially at board and executive levels, with regards to planning and decision-making. Autistic employees and contractors will be compensated at the same level as other participants doing similar work. 
  4. Acceptance, not stigmatization: All aspects of the organization’s financial cycle, from advertising and fundraising through grants and programs, must be driven by values of inclusion and acceptance of autistic people of all ages and abilities. It is not acceptable to use scare tactics or negative imagery to promote autism awareness.
  5. Advocacy for the human and civil rights of all autistic people: Clear positions must be publicly expressed on issues that affect the well being of autistic individuals. Such issues include the use of physical and chemical restraints; the lack of full inclusion in education, work, and housing; and funding for programs that address the immediate needs of autistic people in their communities.

Autism organizations we recommend:

  • The Autistic Self Advocacy Network (www.autisticadvocacy.org): Self advocate-led policy experts working on national and regional chapter levels to improve quality of life, understanding, and acceptance for autistic people of all ages and abilities via advocacy, handbooks, toolkits, policy briefs, action alerts, campaigns, and social media. 
  • Autistic Women and Nonbinary Network (awnnetwork.org): Provides community, support and resources for Autistic women, girls, nonbinary people, and all others of marginalized genders.
  • Association For Autistic Community (autisticcommunity.org): Fosters community and connections among autistic people, through conferences/retreats such as Autspace, education, and advocacy.
  • Autistics 4 Autistics (a4aontario.com) is a collective of autistic adults, advocating for reform to Ontario’s approach to autism funding and services.

Books to Read

Sourced from https://notanautismmom.com/2020/07/20/autism-books/ on 8.12.2020.

Ten Books To Get You Started

The Reason I Jump by Naoki Higashida

NeuroTribes: the Legacy of Autism and the Future of Neurodiversity by Steve Silberman

Loud Hands: Autistic People Speaking (Anthology) Julia Bascom

Uniquely Human: a Different Way of Seeing Autism by Barry M Prizant

Ido in Autismland by Ido Kedar

It’s An Autism Thing, I’ll Help You Understand It by Emma Dalmayne

Anatomy of Autism: A Pocket Guide for Educators, Parents, and Students by Diego Pena

Leaders Around Me: Autobiographies of Autistics who Type, Point, and Spell to Communicate ed by Edlyn Vallejo Peña, PhD

All the Weight of Our Dreams: On Living Racialized Autism edited by Lydia X Z Brown et al.  (By autistic women of color)

Typed Words Loud Voices edited by Amy Sequenzia & Elizabeth J. Grace

***Beyond Behaviors by Mona Delahooke PhD – This book is not autism-specific but I consider it a must-read!

Books for Kids and Teens

Just Right for You: A Story About Autism by Melanie Heyworth (picture book)

Do You Want to Play? Making Friends with an Autistic Kid by Daniel Share-Strom (picture book)

Wiggles, Stomps, and Squeezes Calm My Jitters Down by Lindsey Parker, illustrated by Rebecca Burgess (picture book) *Preorder now! This book is fantastic and comes out in April.

Suzi Spins by Emma Dalmayne (picture book)

Benji, the Bad Day, and Me by Sally J Pla et al. (picture book)

Too Sticky! :Sensory Issues with Autism by Jen Malia et al. (picture book)

My Wandering Dreaming Mind by Merriam Saunders (picture book)

My Whirling, Twirling Motor by Merriam Saunders (picture book)

Trouble with a Tiny T by Merriam Saunders (novel) *Preorder now!

Anatomy of Autism: A Pocket Guide for Educators, Parents, and Students by Diego Pena

The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman

The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon

Diary of a Young Naturalist by Dara McAnulty

A Kind of Spark by Elle McNicoll (novel)

The Reason I Jump by Naomi Hashida

Planet Earth is Blue by Nicole Panteleakos (novel, autistic author)

Fall down Seven Times Get Up Eight by Naoki Higashida

Can You See Me? by Libby Scott & Rebecca Westcott

Get a Grip, Vicky Cohen! by Sarah Kapit (novel, autistic author)

The Someday Birds by Sally J. Pla (novel, autistic author)

Can You See Me? by Libby Scott & Rebecca Westcott (novel)

The Autism-Friendly Guide to Periods by Robyn Steward

Stanley Will Probably be Fine by Sally J. Pla

Thinking Person’s Guide to Autism

Books recommended by http://www.thinkingautismguide.com/p/resources.html sourced on 8.12.2020.

Autistic Authors

Approaches and Advice

Historical and Cultural Contexts

For Kids

Parenting Perspectives

Fiction

MOVIES
We appreciate movies in which autistic people are more than catalysts for the non-autistic characters’ self-discovery arcs. Please keep this in mind when watching the following movies about autistic people:

TV SHOWS AND SERIES

Autistic representation on TV continues to be questionable and rely on stereotypes. For that reason we do not recommend The Good Doctor, The A Word, and Atypical. But some series present autistic people in more complex and autonomous, if not always ideal ways, including:

ONLINE RESOURCES

ABA (Applied Behavioral Analysis)

Accessibility

Adult Diagnoses

Advocacy: Autism and Disability

Advocacy and Rights

Art and Music

Assistive Technology: iPads, iDevices, Apps, Software

Bullying

Crisis Resources

Communication, Speech, and AAC (Augmentative and Alternative Communication)

Communities

Disability History

Education

Employment

Epilepsy

Inclusion and Social Skills

Parenting

Science and Research

Autistic Parents

Autistic Writers 

Neurodiversity Journalism

Non-Autistic Parents of Autistic People

Helpful and interesting articles or suggested readings:

Sourced from https://www.neurodiversitycentre.co.za/ on 8.12.2020.

Video links:

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